1 Of 18 Down…..

I’m not going to lie, this past week has been a hard one, not just for Sam and I being so far away, but for Mum, as her treatment took a giant leap into the ‘overwhelming zone’ yesterday.

As mentioned in my previous post, Mum now requires full blown radiation treatment to attack the tumours in her brain as well as the bone of her right upper arm, so to say this past week has been a busy one is a bit of an understatement. Let’s start from the Tuesday…..

Tuesday was the day Mum was fitted and measured for her “radiation mask”. In short, a piece of plastic mesh is melted over the face to create a made-to-fit special mask that is designed to keep the treatment area still during radiotherapy in order to make it as accurate as possible. The masks aren’t pretty, in fact they’re pretty confronting, and look like they’re straight off the set of a horror movie, but at least the lipstick Mum was clearly wearing for this fitting makes it a little less Texas Chainsaw Massacre – image below.

From here, Mum had a meeting with the orthopedic (bone) specialist, where results from her recent PET and MRI scans were discussed. Unfortunately, it appears as though the cancer has slowly degraded the bone in her arm, resulting in it becoming quite thin and fragile, and at risk of crumbling or fracturing from the amount of radiation Mum is about to receive. The plan to, hopefully, counteract this, is to surgically insert a metal rod from the rotator cuff down to the elbow, with a few cross pins along the way. This surgery is due to take place after the radiation (a bonus – radiation takes time to damage bone once in the system, so the surgery doesn’t necessarily have to take place immediately), and is scheduled for some time after June 1st.

On Wednesday, Mum met with her oncologist to discuss how the radiation therapies were going to disrupt her immunotherapy treatments. This is where we received one bought of good news, finally. Thankfully, the second infusion doesn’t need to be pushed back as previously thought, as after a discussion between the oncologist and radiation therapist, they don’t believe there is going to be an adverse effect, and are allowing the infusion to continue as scheduled. Therefore, Mum’s second immunotherapy infusion is scheduled for Wednesday the 10th of May, with the 3rd infusion taking place shortly after the radiation therapies conclude. It’s a lot, her body is going to feel it, but at least nothing is being put off, and this a very good thing.

Friday. Radiation commencement day. Mum received her first of 18 radiation treatments yesterday, and was also given her treatment schedule for the next few weeks (attached below). She’s feeling OK, apart from a bit of warmth to the area there apparently wasn’t much discomfort at all. The dexamethasone (steroids) Mum is on twice daily is hopefully going to counteract a lot of the symptoms, but there are two outcomes that can’t be avoided; 1. weight gain/bloating from the steroids, and 2. total hair loss – every woman’s worst nightmare, really!

So lets be honest here, the next few weeks are going to suck, however Mum is remaining extremely positive and is blowing me away with how she is taking each blow with continued strength and a kick-ass attitude. I know with everything she must be feeling incredibly overwhelmed, but speaking to her you wouldn’t know it; she’s a little bit awesome.

I also want to say a huge thank you to my aunts Kerri and Julie, who continue to make sure Mum is at all of her scheduled appointments and treatments, and make sure she always has visitors and company on the weekends. Sam and I, being so far away, appreciate you both more than you know, so thank you, you’re both amazing.

As always, I’ll continue to keep you all updated over the next few weeks – let’s all cross our fingers and hope that these radiation doses work and destroy the hell out of each and every one of those damn tumours!

Speak soon,

Alex

 

 

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